‘Finding My Voice’
As we sat down at a table in a local café, it was hard to imagine that this confident young lady I was talking to suffers from a severe and debilitating stammer, but this indeed was the case.
Now 26, Ballymoney’s Megan Gribben, was enrolled in the ‘McGuire Programme’ helping people overcome their stammer, when she was 17.
Megan was born and brought up much like any young girl, BUT for one difference, she struggled to get even the simplest of words out.
Hindered by a profound stammer, by saying nothing she hid it from all but her closest family and friends.
“Silence, complete silence for years. Mum knew me so well she could actually answer questions that I was asked, she done it for so long.”
She went on to say,
“I was scared of people finding out that I had a stammer. I didn’t want to be seen to be different, so by staying silent, I looked like I was the same as everyone else.”
‘THEY SPOKE FOR ME’
As much as home life was extremely hard for Megan without a voice, it was her school life which would be the most challenging and difficult during both her early years at St Bridget’s Primary School in Ballymoney and later at Dominican College in Portstewart.
A simple task like morning registration was a huge challenge to Megan. While her other classmates answer in full to the teacher, Megan could only simply rely ‘yes’, if anything at all.
Megan’s mum was one of the few people that could understand Megan without her having to say a word and when it came to school, Megan’s Mum would call with her new teachers and ask them not to make Megan talk in class.
This was one of the many ways she learned to cope with the battles of school life.
It was all well and fine relaying on her Mum to be her voice, but at school there was a limit to the support Megan’s Mum could provide given she wasn’t there with her.
This is where Megan’s close friends became her support network.
“I had great friends at Primary & Secondary School who pulled me through it, without them I don’t know how I would have got through it, genuinely”.
When I asked her how they helped, Megan simply said,
“They spoke for me”.
An incident when the class was being covered by a substitute teacher stood out for Megan.
When she was asked to read aloud in class, it took five minutes to get the first words out. Surrounded by her class mates, Megan felt ‘deflated’ and her confidence, what little she had, had taken a knock.
So much so that in similar situations in years to come, Megan avoided class, often choosing to hide away in the school toilets.
“Teachers aren’t taught about stammering, it’s all phycological, but the suffering goes on and its awful.”
Many of us take speaking to family and friends for granted and the thought of not speaking to them on regular basis is inconceivable to most, but for Megan this was everyday life.
A trip to her grandparents involved sitting in the corner saying nothing and as she grew older, she avoid visiting them altogether.
Then Megan dropped a bombshell which had both of us with tears in our eyes!
The first time she was able to speak to her father properly was when she completed her first course with The McGuire Programme, simply stating, as if it wasn’t obvious from her face, that she was; “emotional now just thinking about it”.
The MCGUIRE PROGRAMME
It was during an evening at home with her Mum watching a documentary on stammering on television, that this programme called ‘The McGuire Programme’ was highlighted.
Thinking nothing more of it, Megan carried on, but a seed had been planted in her Mum’s head who approached Megan to ask if this programme would be something she would be interested in. It didn’t take Megan long to decide.
Could she finally have a way of dealing with this debilitating stammer? The answer was yes and a few phone calls later to the regional director, Megan had enrolled on the programme at the age of 17.
As Megan explained to me, The McGuire Programme was started by Dave McGuire in 1994, who himself suffered from the debilitating effects of a severe stammer, but who went on to learn ways to cope and overcome these.
Founding The McGuire Programme, Dave has been able to help others like Megan, breaking the chains which bind stammer suffers in their daily lives.
One of the most famous stammer suffers which the programme has helped, was Pop Idol contestant and singer Gareth Gates.
Dave still plays a very active role in the programme, speaking on a regular basis to many of the participants over the phone or via Skype, including Megan and continues to pass on his experiences and techniques.
The programme doesn’t boast to cure but the techniques taught in the programme are an important part of the course to improvement of a stammer starting with ‘costal breathing’.
“I breath from a different part of my diaphragm, from the top of it, giving a much powerful breath.” Megan explained.
“Another technique is ‘non-avoidance’. Anything that you have avoided in the past, for example introducing yourself, you are taught to go and find as many people as possible and introduce yourself. These are called ‘disclosures’.
I would sometimes do these in Ballymoney.”
More recently Megan also challenged herself even further, and agreed to take part in a radio interview about her stammer on local community radio station FUSE FM Ballymoney.
The programme continues to be solely run by volunteers and indeed those who themselves have a stammer, with no professional help from the likes of speech therapists.
The programme currently runs three courses each year in both the North and South of Ireland for anyone from the age of 14 years up. Alongside courses for those who have gone through the programme, there are also fortnightly support groups within Northern Ireland.
Megan, who still regularly attends these courses and meets along with fellow programme participants, describes them as a ‘big massive family’, saying;
“It’s like going home when you go to see them. On the first day they make you sit in front of a video camera and do a first day video.
“We’re asked our name and about members of the family, just to give them a baseline of the severity of your stammer.
“I remember on my first that I couldn’t say anything. I tried to get my name out for about four minutes, but nothing came.”
A stammer, though it can be controlled or regressed with hard work and determination, for most people will never fully go away and indeed can often reappear at particular times or occasions.
It’s still a daily struggle for Megan who told me that stress can bring on a relapse.
“If I am stressed out or emotional the stammer comes to the fore. If you’re thinking of other things and not your breathing or taking your time, it can all get on top of you.
“But that’s where you go back on the phone list and get help from the programme coaches.”
Having joined the programme at the age of seventeen, Megan now 26, admits it’s only been the last couple of years that she has progressed to where she is now, confident in her speech.
She revealed that denial had played a huge part to getting help with her stammer. The birth of her sister’s baby finally gave her the ‘kick up the bum’ to face her stammer head on.
She set herself the goal of being able to read stories to her little niece, a goal Megan achieved and surpassed.
WHAT LAYS AHEAD
Megan has grown in confidence over the past couple of years, now doing readings in her local church and has recently joined the ‘Mid Ulster Toastmasters’.
This is a group allowing people to build confidence and to find their voice, which Megan has whole heartily embraced and is a regular speaker when the group meets.
So what does the future hold for Megan?
This was something she didn’t have to think about for too long, almost cutting me off mid question.
With a nervous but enthusiastic laugh;
“I want to do a TED Talk”
Megan replied. This of course is in reference to the popular videos shared online of informative, educational and inspiration talks whose slogan is ‘ideas worth spreading’.
Megan, now a university graduate in Social Psychology, has come a long way from hiding in the school toilets or avoiding awkward social interaction.
She continues to progress and later this year plans on taking her exams to become a coach in the McGuire Programme, allowing her to follow in her mentor Dave McGuire’s, footsteps; passing on her experiences, ALL going back to the founding principle and ethos set up by the programme – getting ‘Beyond Stuttering’
A thirty year old Carrick-on -Suir woman who has had to battle from a young age with a stutter impediment has appealed to people having to cope with the same problem to seek help.
Shelly Ryan has made huge strides in overcoming her challenges by getting up the courage to enrol in the McGuire Programme last year after backing out of it for years.
“This is a programme run by people who stutter to help other people who stutter. Doing this programme has certainly given me a new outlook on life and my confidence is growing, I am no longer holding back and letting my fear stop me from achieving my goals, and for the first time in a long time I am looking forward to the future.
“From a very young age I could feel great shame and embarrassment.
“For as long as I can remember it has always been there, this thing which I could not understand made me feel so different to everyone else, in school was my most difficult times as the teachers would ask me to read aloud which for anyone else this wouldn’t seem like a big deal.
“I remember always trying to think of ways to get out of it, like pretending I needed the bathroom or that I wasn’t well”, says Shelly.,
“My friends were great though and always wanted to help,” she said.
Her speech effected her so much that when it came to leaving secondary school it forced her to consider opting for a career that did not involve speaking.
“All my friends were all talking about what they would like to do in college and what jobs we would like for the future. I remember thinking to myself I would love to do anything that doesn’t evolve speaking” she said.
Shelly said she finally decided to just go for it and applied to do childcare in WCFE in Waterford as she loved children and always wanted to work with them.
“It wasn’t until I finished college that I discovered just how hard getting a job as a person sometimes challenged by stuttering really was. I had numerous job interviews, each one more difficult than the last as every time I got a knock back it just made the next one so much harder” she said.
Shelly was out of college eight years and had never managed to get a job. She did manage to finally get a job in the Sugradh creche and is very grateful to Denise and Trish for giving her the opportunity.
Contact number for the McGuire Programme: 086-3429602
A teenager from Upminster, who overcame his own stammer, is now going to help teach others.
16-year-old Callum Wells has lived with a “covert stammer” his entire life. Growing up, he had to make constant efforts to avoid stammering and situations which might induce it.
“It was very exhausting, my mind was constantly alert for these situations and I would even avoid saying certain words,” he said.
“I remember sitting in class with the feeling of dread the whole time that the teacher might pick me to speak in front of someone.”
According to Callum, it is common for a stammerer to struggle saying their own name which can cause a lot of confusion for their friends and family.
“I didn’t know anyone else with a stammer and I was afraid people wouldn’t understand.
“When you’re in school there’s so much pressure to be like everyone else and fit in. I didn’t think I would if I had a stammer.”
There is no cure for the speech impediment but there are multiple ways people can learn to control it.
In March last year, Callum joined the McGuire Programme which runs a course helping people overcome their difficulties all over the country.
And now he is helping others to overcome both the physical and mental aspects of their speech impairment.
“I was taught a new way to breathe and speak,” he added. “It teaches you how to be assertive and speak publicly.
“It also helped with my self acceptance as many people didn’t even know I had one.”
Soon he’ll begin his training to become a staff mentor or coach and said: “I really love seeing the development from a shy stammerer to them speaking publicly in school.”
As a child, he had a speech therapist and tried hypnotherapy but neither of them had the same impact.
It’s not a “quick fix,” however, and Callum still works on his speech every day.
The programme has attracted a community of “amazing people” that are always willing to help.
One in 100 people have a stammer and he has also written to the Education Secretary, Damian Hinds, because he believes “the stigma of stammering needs to be tackled and people need to be educated.”
You can hear more from Callum in the news on Time 107.5 from 7am tomorrow (Monday, 21 January).
2018 is closing its doors and what a way to sign off the final Irish McGuire Programme course of the year! The ripple effect from the ‘School for Stammerers’ documentary is still inspiring people to seek the path to articulate eloquence.
Seventeen people courageously stepped forward to take control of their stutter in Newry. The course was held in the Canal Court Hotel. The course commenced at 7pm on Wednesday 24th October and finished up around 7.30pm on Saturday 27th October. Kara McMahon – from the Newry area – instructed the course. Kara steered a tight ship and her disciplined yet warm humourous approach kept everyone smiling and in good spirits.
It was clear from Kara that support was a crucial factor to start this new journey against stuttering. The McMahon family were involved throughout the 3-days, reinforcing that “we’re all in this together” mentality and breaking down that sense of isolation.
Up to sixty graduates, coaches and course instructors came back to work on their own speech but also to teach and support the new students’ to ensure they get the best possible start to their new journey. The McGuire Programme blossoms when we all help each other grow.
The different ages and backgrounds of those in attendance gave a vibrant atmosphere to the room.
It was great to see the transformations in seventeen very determined people in just 3 days. On Wednesday night they were ruled by their stutter, fuelled by fear. By Saturday they could see and feel the freedom of speaking with control. They now have the techniques and support to combat their stutter and to live the lives they have only dreamed of.
Another year of journeys started and people empowered.
I spoke to this wonderful lady, Martina, who wanted to reach out to others and offer support. Over my career in healthcare I have had the privilege to work with the bravest individuals, from young to old, who experience stuttering in daily life. She put her thoughts in writing they were so powerful.
Martina writes: “I have had a stutter for as long as I can remember, and my earliest memory of this is when I was about 4 and I was in school and I couldn’t say my name or read out loud. Reading in class was a nightmare. I would stand up but the words just wouldn’t come so the reading would pass on to the next student. Through my life in school nothing changed. I knew that I was different and I didn’t know what to do so I started to avoid words and speaking situations.
“I remember thinking, what will I do when I have to get a job? I never got the job I wanted because of my stutter. My first idea was to do a secretarial course and work in an office but realistically that was never going to happen because I couldn’t take or make phone calls. If I was in a place where a phone rang, I would walk away and pretend I didn’t hear it. I never made a phone call in earshot of anyone because I was embarrassed by my stutter and if I had to make a call I was very good at manipulating people to do it for me.
“I got a job in retail in 1975 when I left school, and it was only meant to be a summer job but I was employed and loved it. I had to turn down more interesting roles that I was so capable for as I would have had to make presentations make and take phone calls and interact competently on a daily basis. I made an excuse and declined the offer. I was very upset. I felt useless.
“I could never order what I wanted in a restaurant I would point at the menu if I wasn’t in a position to point I would order what I could say at that moment.
I would always struggle making appointments with doctors etc. Booking hotels I couldn’t say ‘double room’, I would say ‘a room for me and my husband’. Life went on and nothing changed. On my wedding day I cried walking down the aisle, so that when it came to saying my vows my voice was shaky and I could hide my stutter. I had planned this weeks ahead.
“I called my daughter a name I could say. When she was young I could never read her a bed time story. It made me sad. I never left the house without a pen and paper so that if I got into a stressful situation with my speech I would make an excuse and say that I had just come from the dentist and would it be ok if I wrote down my name and address as it was usually that that I would be having a problem with.
“That was the way I lived my life for 53 years. I did speech therapy and I tried hypnotherapy and neither worked for me.
“In 2002 there was a programme on TV called Pop Idol and there was a guy on it called Gareth Gates and when he came on stage he had to introduce himself and he struggled saying his name. He came second on that show and became a celebrity. I researched and found that he completed the McGuire Programme. I did a bit of research on the programme and I joined in 2010.
“I haven’t gone back to school where reading was a problem, but I put myself forward to do readings in my local church. Saying my name is no problem anymore and we are encouraged to say our name every time we answer our phone. I haven’t changed my job but I have no problem making or taking phone calls. I have gone for interviews just to prove that I can get through one with no fear of speaking. I enjoy making appointments and ordering food in restaurants not just for myself but for anyone else there too.”
Dr Eddie Responds;
I have recommended many people to the McGuire Program. Details on www.stammering.ie. I have seen the transformation from old negative feelings of shame, embarrassment, sadness , stress and anxiety to competence, confidence, empowerment and finally freedom. Living with a stutter is very stressful. You can’t be the person you want to be and the McGuire Programme offers you a way out of this restricted life.
What I like most about the program is its organisation run by people who stutter to help other people who stutter.
They deal with both the physical and psychological side of stuttering. There is no cure or magic pill but with hard work courage and perseverance your life can be changed.
Martina reminded me the importance of raising hope for people who stammer.
Original Post: LEINSTERLEADER
20 years after joining The McGuire Programme, Katie speaks confidently and opens up about her struggle with a stammer as a child.